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Медицинские вопросы и проблемы подростков, больных муковисцидозом

Год написания книги
2018
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252

Melzi ML, Kelly DA, Colombo С et al. Liver transplant in cystic fibrosis: a poll among European centers. A study from the European Liver Transplant Registry. Transpl Int 2006; 19:726-31

253

Accurso FJ, Rowe SM, Clancy JP et al. Effect of VX-770 in persons with cystic fibrosis and the G551D-CFTR mutation. N Engl J Med 2010; 363:1991-2003

254

Ramsey В, Dong Q, Yen К, Elborn J. Efficacy and safety of VX-770 in subjects with cystic fibrosis and the G551D-CFTR mutation. Pediatr Pulmonol 2011; 46(S34):286-7

255

Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: Challenges to disease self-management. J Cyst Fibros 2009; 8:91-6

256

Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Pediatr Clin North Am 2011;58:865-85

257

Modi AC, Marciel KK, Slater SK, Drotar D, Quittner AL. The influence of parental supervision on medical adherence in adolescents with cystic fibrosis: developmental shifts from pre to late adolescence. Child Health Care 2008; 37:78-92

258

Kettler LJ, Sawyer SM, Winefield HR, Greville HW. Determinants of adherence in adults with cystic fibrosis. Thorax 2002;57:459-64

259

Quittner AL, Espelage DL, levers-Landis C, Drotar D. Measuring adherence to medical treatments in childhood chronic illness: considering multiple methods and sources of information. J Clin Psychol Med Settings 2000; 7:41-54

260

Rapoff M. Adherence to pediatric medical regimens. 2nd edition. New York: Springer, 2010: 232

261

Dunbar-Jacob J, Mortimer-Stephens MK. Treatment adherence in chronic disease. J Clin Epidemiol 2001; 54 (12 Suppl 1):S57-S60

262

La Greca AM, Bearman KJ. Adherence to prescribed medical regimens. In: Roberts MC, ed. Handbook of pediatric psychology. 3rd edition. New York: Guilford, 2003:119-10

263

Modi AC, Quittner AL. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way? J Pediatr Psychol 2006;31:846-58

264

Quittner AL, Drotar D, levers-Landis C, Slocum N, Seidner D, Jacobsen J. Adherence to medical treatments in adolescents with cystic fibrosis: the development and evaluation of family-based interventions. In: Drotar D, ed. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods, and interventions. Mahwah, USA: Lawrence Erlbaum Associates, 2000: 383-407

265

Burrows JA, Bunting JP, Masel PJ, Bell SC. Nebulised dornase alpha: adherence in adults with cystic fibrosis. J Cyst Fibros 2002; 1:255-9

266

Daniels T, Goodacre L, Sutton C, Pollard K, Conway S, Peckham D. Accurate assessment of adherence self-report and clinician report vs electronic monitoring of nebulizers. Chest 2011; 140:425-32

267

Eakin MN, Bilderback A, Boyle MR Mogayzel PJ, Riekert KA. Longitudinal association between medication adherence and lung health in people with cystic fibrosis. J Cyst Fibros 2011; 10:258-64

268

McNamara PS, McCormack P McDonald AJ, Heaf L, Southern KW. Open adherence monitoring using routine data download from an adaptive aerosol delivery nebuliser in children with cystic fibrosis. J Cyst Fibros 2009; 8:258-63

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Modi AC, Lim CS, Yu N, Geller D, Wagner MH, Quittner AL. A multimethod assessment of treatment adherence for children with cystic fibrosis. J Cyst Fibros 2006; 5:177-85

270

Rapoff M. Adherence to pediatric medical regimens. 2nd edition. New York: Springer, 2010: 232

271

Dunbar-Jacob J, Mortimer-Stephens MK. Treatment adherence in chronic disease. J Clin Epidemiol 2001; 54 (12 Suppl 1):S57-S60

272

Modi AC, Quittner AL. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way? J Pediatr Psychol 2006;31:846-58

273

Abbott J, Dodd M, Gee L, Webb K. Ways of coping with cystic fibrosis: implications for treatment adherence. Disabil Rehabil 2001; 23:315-24

274

Zindani GN, Streetman DD, Streetman DS, Nasr SZ. Adherence to treatment in children and adolescent patients with cystic fibrosis. J Adolesc Health 2006; 38:13-7

275

Smith BA, Modi AC, Quittner AL, Wood BL. Depressive symptoms in children with cystic fibrosis and parents and its effects on adherence to airway clearance. Pediatr Pulmonol 2010;45:756-63

276

Quittner AL, Slater S. Parenting stress, depression, and caregiving for young children with cystic fibrosis. Pediatr Pulmonol Suppl 2005;40:180-1
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